Tonight while browsing around the net, I came upon a post that touched my heart. Tyler is a happy 7 year old boy. A little over two years ago he began having problems. After many doctor visits he was finally diagnosed with Dystonia.
Dystonia is a neurological movement disorder affecting the central nervous system characterized by involuntary and often painful spasms of the muscles. This disorder currently has no cure and progressively robs one of the ability to control voluntary movements and even the ability to walk. * Tyler’s Story.
For Tyler it has gotten so that at times he cannot eat because he cannot close his jaw. His little sister was recently diagnosed with Dystonia after having watched her brother suffer from it as well. It has been a very hard couple of years for this family.
TylersHope.org is a non profit organization working to find a cure. They want to raise awareness in order for diagnosis to be found quicker, to find effective treatments to ease suffering and to find a cure for this debilitating disorder.
You can help support TylersHope by buying products to help promote awareness, shirts, hats, visors, a lapel pin or even a beautiful bracelet or you can donate with a check or through paypal. TylersHope is operated by volunteers only, which means 100% of your donation goes towards finding a cure.
great post…thanks for spreading the word!
Comment by Dan... — Sunday, April 13, 2008 @ 5:57 pm